Links to helpful organisations

Sarcoma UK Tel: 0207 2508271 www.sarcoma.org.uk
Sarcoma UK is the only cancer charity in the UK focusing on all types of sarcoma

GIST Support UK Tel: 0300  400 0000 http://www.gistsupportuk.com
GIST Support UK is here to be with you as you come to terms with living with GIST

Macmillan Cancer Support www.macmillan.org.uk
We provide practical, medical and financial support and push for better cancer care

Macmillan Telephone Buddies www.macmillan.org.uk/get-involved/campaigns/telephone-buddies
Macmillan Telephone Buddies is a new UK wide telephone befriending service, set up by Macmillan in response to the coronavirus pandemic.  Anyone affected by cancer can receive a regular telephone call – for a period of up to 12 weeks – from a trained volunteer buddy who can be there to provide a listening ear and support your patients and their families who may be experiencing isolation and loneliness.

For patients and families across Scotland: www.chss.org.uk
Macmillan have joined forces with Chest, Heart & Stroke Scotland’s ‘Kindness Project’ which offers practical support to people affected by cancer such as shopping, collecting medications and dog walking.

Cancer Help UK www.cancerhelp.org.uk
We fund scientists, doctors and nurses to help beat cancer sooner. We also provide cancer information to the public

Bone Cancer Research Trust www.bcrt.org.uk
Our aim is to improve outcomes for people with primary bone cancer through Research, Awareness, Information and Support

CLIC Sargent (Children & Young people) www.clicsargent.org.uk
CLIC Sargent is the UK’s leading cancer charity for children and young people, and their families

Look Good Feeling Better www.lookgoodfeelbetter.co.uk
Look Good Feel Better is the only worldwide cancer support charity, providing practical support for women struggling with the side effects from cancer treatment

Wessex Cancer Trust www.wessexcancer.org
Wessex Cancer Trust exists to provide local support for people living with or affected by cancer, irrespective of their age

British Sarcoma Group www.britishsarcomagroup.org.uk
The British Sarcoma Group is the association of the specialist clinicians, nurses and supporting professionals who treat patients with sarcoma in England, Wales, Scotland and Northern Ireland

British Sarcoma Group Conference www.britishsarcomagroup.org.uk/conference

Sarcoma treatment guidelines http://www.lsesn.nhs.uk/guidelines.html
Detailed guidelines for treatment and follow-up for each sarcoma subtype, issued by The Royal Marsden, University College Hospital and Royal National Orthopaedic Hospital.

UK Clinical Trials Gateway www.nihr.ac.uk
The UK Clinical Trials Gateway provides easy to understand information about clinical research trials running in the UK.

Willow Foundation www.willowfoundation.org.uk
Willow is the only national charity working with seriously ill young adults aged 16 to 40 to fulfil uplifting and unforgettable Special Days.

Shine shinecancersupport.org
Our vision is that every adult in the UK diagnosed with cancer in their 20s, 30s or 40s can access the help and support that they need in a way that suits their lifestyle, and are a part of a confident, supportive and empowered community of young adults with cancer.

Pelvic Radiation Disease Association www.prda.org.uk
We work to ensure that pelvic radiation disease, a late effect of radiotherapy treatment affecting at least 8,500 new patients each year, is recognized as a distinct illness.

NHS Cord Blood Bank http://www.nhsbt.nhs.uk/cordblood
By donating your cord blood after the birth of your baby you could save someone’s life.

Living Well Active  http://www.livingwellactive.org
Connecting people living with cancer in Dorset to opportunities for activity, knowledge and support for health, fitness and wellbeing.

Comments

  1. Hi Sarcoma Support ,

    My name is Jacqueline Salinas and I'm a member of the Public Outreach Department for the Mesothelioma Center (Asbestos.com). While I was browsing through a number of health and cancer sites I came across your website and was very impressed by the information you have listed. Mesothelioma is a rare cancer that affects areas surrounding the lungs, heart, and abdominal area.

    I'm writing you because I thought you may be interested in including us as a resource on your page at sarcoma-support-south.org.uk/links/.

    Please take a look at our website Asbestos.com, and let me know what you think or if you have any questions. Thank you for your time and I look forward to hearing back from you.

    Best regards,
    Jacqueline Salinas
    Public Outreach
    Mesothelioma Center at Asbestos.com

    1. Hi Jacqueline,

      Yes, we have put your website on our sarcoma group links page.

      Best wishes,
      Tricia Moate

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