This article The Healing Power of Your Own Medical Records in the New York Times is about a student at MIT who discovered his own brain cancer, has a video of the 10 hour operation to remove it, has copies of all his scans, 300 clinical reports, genetic data etc. He even has a 3-D printed copy of the tumour.
His case points to what medical experts say could be gained if patients had full and easier access to their medical information. Better-informed patients, they say, are more likely to take better care of themselves, comply with prescription drug regimens and even detect early-warning signals of illness, as Mr. Keating did.