They have sent out over 750 packs so far.
All posts by Steve
Tea Party
We had a great tea party last Saturday as part of Sarcoma Awareness Week.
You can see more photos at Sarcoma Awareness Week.
Two appalling numbers
As part of their On the Ball campaign, Sarcoma UK has tweeted two astonishing statistics:
- Only one in four of sarcoma referrals are to a specialist centre.
- Sarcoma patients wait on average 1½ years for referral.
I find those numbers terrifying and so I applaud Sarcoma UK’s efforts to dramatically improve them. In their strategy for 2014 – 2020 Transforming the landscape for sarcoma they have two targets to deal with this:
- 100% of people diagnosed with sarcoma will be treated under the care of a sarcoma multi-disciplinary team (compared to only 60% in 2013) (page 19).
- 80% of people with suspected sarcoma will be referred to hospital for further investigations on their first or second visit to their GP (compared to 2013 where one third of sarcoma patients visit their GP three times or more before referral) (page 15).
Dorset Magazine is now online
Now that July’s edition of Dorset Magazine is in the shops, June’s edition is available in the archives at Dorset Magazine. You will need Flash and the article starts on page 92.
It’s Sarcoma Awareness Week
Tea party
See photos of previous tea parties here.
Weekly digest email
You can sign up for a weekly digest of any new blog posts on this page. This will be emailed to you every Sunday.
Either click on the Weekly Digest tab above the Tweets on the right of this page, or use the same form below:
Sarcoma UK Publications
Sarcoma UK publish a number of useful guides and factsheets:
- Understanding sarcoma: a new patient’s guide;
- Understanding GIST;
- Rehabilitation for sarcoma patients;
- Following surgery: some questions answered.
You can order copies from here or download them directly from Publications.
On the Ball campaign
The Cancer52 report highlights how important fast referral by the GP is for successful treatment of Sarcoma. So, if you haven’t already done so, please apply for Sarcoma UK’s On the Ball pack to give to your GP.
Inside the GP pack is:
- A letter to your GP
- ‘Is it Sarcoma?’ golf ball keyring
- Sarcoma Diagnostic Tool for GPs
You can apply for the pack at http://www.sarcoma.org.uk/Awareness/ontheball
Cancer52 Report
Cancer52 is an alliance of nearly 80 predominantly small charities united in their vision of seeing a better future for everyone affected by the rare and less common cancers. Their report, published today, shows how rare Sarcoma is:
New cases of cancer diagnosed in 2012, England as a percentage of all cancers | ||
---|---|---|
Cancer Type | Cases | % of Total |
Sarcoma: connective and soft tissue | 1609 | 0.57% |
Sarcoma: Bone | 515 | 0.18% |