Some of the things I will be telling my GP to go with the On The Ball pack:

• Sarcoma UK are worried that recognition of sarcoma is not as good as it could be. This is because sarcoma is so rare (less than 1% of all cancers in England) and sometimes quite difficult to diagnose. Unfortunately the survival rate is only 55% and the aim is to dramatically increase that.
• A recent report from Cancer52  on National Cancer Intelligence Network data shows that the survival rate for soft tissue sarcoma is 98% if the GP refers a patient within a month.
• Statistically speaking, a GP is not likely to see more than one patient with sarcoma in their career lifetime making diagnosis that much more difficult.

This is a new page with a patient’s experience of the importance of seeing the right oncologist and her talk to the All Party Parliamentary Group on Cancer.

We had a great tea party last Saturday as part of Sarcoma Awareness Week.

You can see more photos at Sarcoma Awareness Week.

The chief executive of Sarcoma UK, Lindsey Bennister, is interviewed on TV to start off Sarcoma Awareness Week which runs from today until Saturday.