Useful documents

Document Details
Sarcoma treatment guidelines Detailed guidelines for treatment and follow-up for each sarcoma subtype, issued by The Royal Marsden, University College Hospital and Royal National Orthopaedic Hospital.
These guidelines will help you understand your care and are highly recommended
http://www.lsesn.nhs.uk/guidelines.html
Sarcoma UK publications These publications can be read online or ordered by post and give very readable information for patients.
Understanding sarcoma: a new patient’s guide is wonderful for those dealing with sarcoma for the first time.
http://sarcoma.org.uk/resources
Connect magazine is a good read about the work that Sarcoma UK does.
http://sarcoma.org.uk/news-events/connect-your-quarterly-read
Wessex Strategic Cancer Clinical Networks
There are a number of interesting documents here including:

  • Dashboard – statistics of cancer care in Wessex with lots of charts illustrating the data
  • Plan on a page – NHS England (Wessex) Transformational Priorities 2014/15 – 2015/16
  • Presentation – Developing a 5 year strategic vision for Wessex Cancer Services

http://www.wessexscn.nhs.uk/network-structures/cancer/upcoming/cancer-strategic-clinical-network-steering-group-and-strategy-meeting/?eID=34

2014 National Cancer Patient Experience Survey
As well as the national survey there are reports on individual hospital trusts
https://www.quality-health.co.uk/resources/surveys/national-cancer-experience-survey/2014-national-cancer-patient-experience-survey
Cancer Statistics for the UK
Cancer Research UK has published a vast array of statistics for all types of cancers including bone and soft tissue sarcoma http://www.cancerresearchuk.org/cancer-info/cancerstats/
Cancer52 Report
Cancer52 is an alliance of nearly 80 predominantly small charities for rare and less common cancers.
http://www.cancer52.org.uk/reports/

 

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