All posts by Tricia

Dorset Macmillan Patient Information Service

Macmillan Patient Information Project is piloting 4 information and support services for anybody affected by cancer:

These services offer a listening ear, health and wellbeing advice and information, signposting to local services and groups and referrals to advocacy or welfare and benefits services.  No appointment required.  Feel free to pop in.

Dr Rachael Brastock

Dr Rachael Brastock was our guest speaker this week at our support group. She is the Macmillan Specialist Clinical Psychologist for Dorset and is based at the Weldmar Hospice in Dorchester. She is such a warm person and gave us an excellent presentation about living with cancer. Rachael outlined some theories about being diagnosed and emotional well being and coping. She shared some useful strategies that we, as patients and carers, can use to help cope with anxiety and the uncertainty of cancer. Rachael explained the different levels of psychological support that is available to us in Dorset. It is patchy and she was due to meet with the Dorset Clinical Commissioning Group and Poole, Bournemouth and Dorchester hospitals to discuss this in a bid to improve availability.

Those of us in the group who have accessed psychological care agreed it proved beneficial  and that is is hard to admit to yourself that you are not coping and need help.

Steve has added Rachael’s presentation to our website here. You may be mystified to see photos of chocolate éclairs which Rachael dispensed to us and we took part in an exercise which was illuminating – let me just say “There is no learning without doing.”Tricia

Statement by Poole Hospital NHS Foundation Trust

At its last public meeting, the Dorset Clinical Commissioning Group (CCG) published its proposals as to how health services in Dorset should develop in the future and agreed that their preferred option for the Major Emergency Hospital in Dorset is the site of The Royal Bournemouth Hospital (Option B).

Within Poole Hospital, we have been reflecting carefully on this announcement, and given that this is such an important issue, we have taken time to discuss this together before responding to the CCG.

The most important thing that we have to remember is that things really cannot stay as they are – the current service configuration is not clinically or financially sustainable. We don’t have the finances in Dorset to maintain the current arrangement long term, and even if we did, we couldn’t recruit all the staff that would be needed. We also know that as a health and social care community, we can improve outcomes for patients by working together differently.

Poole clinicians have played an active part in the Dorset Clinical Services Review, and support the new service models that have emerged from it. Our staff have also been working very closely with partners in The Royal Bournemouth & Christchurch Hospitals NHS Foundation Trust and Dorset County Hospital NHS Foundation Trust as part of a new national programme – the Acute Care Vanguard initiative – aimed at improving services. We are enjoying this closer joint working, and look forward to continuing in this way with all our partners. However, we have a number of concerns regarding the CCG preferred site option.

Overall, we were very disappointed that the CCG did not select Poole Hospital as its preferred site for the Major Emergency Hospital, given our more central location in Dorset, our history as the main “Accident Centre” in the east, our lead provider role for maternity and paediatric services in the east, and our role as the designated Dorset Cancer Centre. We already provide the vast majority of the services that have been specified for the Major Emergency facility.

Given that 93% of our inpatient work is emergency, Option B represents a major change from our current portfolio of services, and a significant change within the Dorset health community.

We fully accept that either option can be made to work, but in our view, Option A (that is, siting the Major Emergency facility at Poole Hospital) is the better option.

There are two important service issues that we believe should be reviewed and tested further as this work progresses:-

  • We are concerned that the preferred option has been identified in advance of any firm agreements relating to the future of maternity and paediatric services in the west. A recent review carried out by the Royal College of Paediatrics and Child Health has reaffirmed that maternity and paediatric services at Dorset County Hospital are not sustainable on a stand-alone basis in the long term. The Report identified two different options for the Trust – either to establish a joined-up service with Yeovil District Hospital, or to establish a joined up service with east Dorset. The two Trusts have been asked to work together to reach agreement within a maximum of six months, but if this is not possible, work should commence on joining up with the east.

If patients (adults or children) are required to travel to the eastern side of the county, it will be quicker and easier for them and their families to attend Poole Hospital rather than the Royal Bournemouth Hospital. We believe that this is such an important issue that it should be resolved before any final decision is made concerning the best location for the Major Emergency Hospital.

  • We are concerned that in pursuing Option B, cancer services for the people of Dorset may become fragmented. Within Poole Hospital, we currently have all the services and facilities on site to support the delivery of cancer services for the population – including radiotherapy and chemotherapy services, haematology and oncology beds, and a Level 3 Intensive Care facility. Whilst other hospitals in Dorset provide some of the treatments and/or part of the patient pathway, as the Dorset Cancer Centre, we are the only hospital to have all these facilities sited together.

Pursuing Option B will mean that these services are no longer all together, and the Cancer Centre multi-disciplinary team will no longer be based in one unit. In a small number of cases, patients may need to be transferred between the two hospitals.

We recognise that this can be made to work, but there will be extra costs involved in mitigating these problems. In our view, the situation could be avoided if Option A were selected and Poole Hospital were designated as the Major Emergency Hospital. We believe that this is a very important issue, and as such, we have asked the CCG to carry out further work to assess the impact on cancer services under each option.

As well as these concerns, we have a number of questions as to how the two options have been scored – for example, how the Bournemouth site has been scored as being more accessible, and how both options have been scored equally for deliverability. We shall be working with the CCG to understand these better.

In highlighting these issues to the CCG, it is hoped that we might develop a better understanding of all the “pros and cons” of each option, and that in doing so, there will be more informed discussion when the formal consultation process starts later this year. At the end of that consultation, once the final decision is taken, we will work with the CCG and all other partners to implement these changes together.

In the meantime, it is important to remember that these are all long term changes to the healthcare landscape, and the priority for Poole Hospital will be to continue providing great care for our patients. At the same time, the priority for our health community must be to develop robust, integrated community services outside the hospital setting. This is needed to enable us to meet the projected increase in demand for health care, without the need for more beds.

If we are asked to develop as the Major Planned Care Hospital, Poole Hospital will benefit from considerable capital investment, and will continue playing a vital role in east Dorset – introducing innovative new ways of working with GPs and the community, and providing all the routine planned care for the patch. Poole Hospital has a bright future, whichever option is chosen.

PRESENT: Expression of interest by patients

Please find attached an opportunity to

 Have your say: Opportunity to help design a webpage for healthcare to improve services

Expression of interest by patients

I understand that they are planning to run several focus groups across the Uk if there is enough interest

Please pass this on to anyone you feel might be interested.

Tracy Street
Macmillan involvement Coordinator
South West England
Covering: Devon, Cornwall & the Isles of Scilly, Avon & Somerset, Wiltshire, Dorset, Hampshire, Isle of Wight and the Channel Islands.

Wessex Cancer Trust Bournemouth

I dropped into the new Wessex Cancer Trust support centre in Bournemouth. It’s a lovely facility and the staff are very welcoming. It’s open Tuesday, Wednesday and Thursday 10 – 4 pm and offers befriending, counselling and complementary therapies.

There is some parking on site. I did find it tricky to find as there is no obvious signage and looks like an office block. You have to push a buzzer to gain access and there is a lift. Look for the building called Fairview. (If you are driving it’s half way along Hinton Road on the left hand side.)

I took some of our support group leaflets and the manager Debbie is going to check with head office to see if they can display them.

https://www.wessexcancer.org.uk/bournemouth

Bournemouth Cancer Support Centre
Fairview House
17 Hinton Road
Bournemouth BH1 2EE
T: 01202 315824

Patients’ Priorities For Cancer Research: A Pilot Study

Below is the PACER poster which was presented at the National Cancer Research Institute conference in November. Dr Sing Yu Moorcraft, a Clinical Research Fellow, carried out a pilot study at the Royal Marsden. She asked cancer patients what they thought were their priorities for research and the results are very interesting. She is hoping to take the study forward by now carrying out the study at more hospitals to gain more opinions.

PACER
PACER NCRI poster
Click to see the poster

Cancer Research UK: Take part in a live podcast!

Would you like to attend a Cancer Research UK event in Southampton? On Tuesday 26th January 2016 1- 4 pm they are hosting an event for patients and carers at Southampton University in the Nuffield Theatre.

Find out how CRUK fund their research and how they involve people in their work and speak to staff and researchers from the centre

Read more information below and click on http://tinyurl.com/CRUKSouthampton2015 to register for tickets for the event. Lunch is provided and also travel expenses will be covered.

Tricia Moate

Event Details

Every year, Cancer Research UK raises funds for vital and life saving research. This research helps us get one step further to our goal of Beating Cancer Sooner.

Funding research can be a complex process. That’s why we’ve enlisted the help of some friends to explain how we do this in a really fun and interactive way. We will be exploring the funding process and looking at the opportunities for involving people in our work through a 60 minute podcast. This will be a great opportunity to:

  • Learn about how Cancer Research UK funds its life saving work
  • Get an overview of how we involve people in our work and our research
  • Speak to the researchers and staff at the centre
  • Participate in an innovative science podcast
  • Give us your views on our processes and work
  • Give you the opportunity to join Your Involvement Network and get involved

http://tinyurl.com/CRUKSouthampton2015

Bournemouth University Carer and Service User Partnership

Would you like to get involved in education and research within the School
of Health and Social Care at Bournemouth University?

The Carer and Service User Partnership (CSUP) team led by Angela Warren and
Peter Atkins are actively recruiting patients and carers whose experience can
benefit the students and influence future Health and Social Care workforce. I
met Angela this week and she was extremely helpful and charming. She said that
the partnership has been running for ten years. There are many ways we can get
involved including:

  • Speak to groups of student nurses, social workers, midwives,
    physiotherapists etc about your experiences;
  • Take part in meetings about what students should learn, help academics
    plan courses and develop resources;
  • Take part in interviewing and selecting students;
  • Participate in research projects.

Angela and Peter provide induction, training and support. Travelling
expenses are reimbursed and in addition current payment rate is £10 per hour. If
you do not wish to receive payment for your time, you can request that the money
be donated to a registered charity of your choice (eg Sarcoma UK).

Go to www.bournemouth.ac.uk/csup for more  information and an application form.

Tricia